Come join us for an afternoon of writing & addressing thank you notes to the donors, volunteers, bidders, and attendees of LADN’s recent Unity in Community fundraiser event! We could use your help! Please let us know if you are available to volunteer by RSVP’ing here!

…and since it’s Cinco de Mayo, we’ll also be making electrolyte margarita mocktails to enjoy while we write!

When: Sunday, May 5th, 1-4pm. Feel free to come for the entire time, or stop by briefly to write a few notes! This is an open-house style event.

Where: A backyard in Pasadena. Please RSVP here if you’d like volunteer your help with our thank you notes, and we'll send you the address!

A note about COVID/general safety: We will be outside and expect everyone to take the necessary precautions to maintain everyone's health. If you have any (contagious) symptoms, please do not attend. By attending this event, you agree not to hold LADN or the homeowners liable for any risks (COVID or otherwise) associated with gathering. Thank you for understanding, and please feel free to reach out with any questions.

Join us for our monthly support group for dysautonomia patients and caregivers living in the Los Angeles area. Our support group provides a space for patients to share their experiences related to dysautonomia, as well as an opportunity to provide and receive support from others living with this condition. This meeting will take place in a virtual format via Zoom. Please email LADN@la-dn.org if you are interested in attending and would like to receive the meeting link.

Support Group Disclaimer:

Please note this is a community organized support group. It is not facilitated by a licensed medical or mental health professional. Talk with your doctor before implementing any advice from the group.

Join us on Sunday, April 21st, 12-3pm in Pasadena for Unity in Community, LADN's 2nd annual fundraiser event!

We look forward to seeing you there! There will be a silent auction, raffle, and heads or tails game, as well as entertainment including musical performances, speeches by distinguished guests, tarot card reading, caricatures, and kids' activities! Lunch will be available for purchase at the Pie ‘n Burger food truck, and 100% of sales will be donated to LADN! Other highlights will include a dysautonomia awareness wall, photo backdrop (with fun props!) and free electrolyte samples from LMNT and NormaLyte. We are so excited to get the LADN community together to celebrate, spread awareness, and raise funds for LADN's many patient support programs!

Visit https://givebutter.com/c/LADN-2024 to get your free tickets and purchase your event t-shirt!

For sponsorship opportunities, please visit this link.

Join Syren Nagakyrie, founder of Disabled Hikers, for a discussion about how to enjoy nature with a chronic illness! We will discuss how to reframe narratives about who is valid in the outdoors and why, how to create experiences that are meaningful for you, and how to find the information that you need. Syren will share their experiences and tips for hiking with POTS, and breakout groups will provide an opportunity for community building.

This will be a virtual workshop on Zoom on Wednesday, April 10th, 12-1:30pm. We will send out the Zoom link to our email list a few days beforehand. If you’d like to attend but aren’t currently on our email list, please reach out to us at LADN@la-dn.org.

About Syren:

Syren Nagakyrie (they/them) is the founder and director of Disabled Hikers, and the author of The Disabled Hiker's Guides to Western Washington and Oregon, and Northern California. They grew up with multiple disabilities and chronic illnesses, including Postural Orthostatic Tachycardia Syndrome. Nature has provided a sense of belonging where society has told them they don't belong, and Syren wants to share that source of connection with all people who are disabled or have a chronic illness.

UPDATE: THIS EVENT HAS BEEN CHANGED TO A VIRTUAL SUPPORT GROUP MEETING DUE TO RAIN IN THE FORECAST! Please email LADN@la-dn.org for the Zoom link!

We hope you will join us this Saturday, March 23rd from 1-2pm on the beach in Malibu for a relaxing in-person support group meeting!

That's right -- LADN goes to Malibu! We suggest parking in the lot by Gladstone's Restaurant (17300 Pacific Coast Hwy, Pacific Palisades, CA 90272) and then heading down the ramp to the beach from the parking lot. We'll have some balloons so you can spot us! Parking is $7, which we are happy to reimburse.

In our experience, this stretch of beach tends to be pretty empty in the colder months, so hopefully this will be a peaceful, calm experience! Being by the ocean is supposed to be good for the nervous system after all!

This time of year, the weather could be warm or cold! But we will bring some shade coverage if it's sunny and blankets if it's cold. However, we do encourage you to bring your own sun protection, jackets, & blankets if you're able! We will have some camp chairs and quilts for sitting on the ground, but please feel free to bring your own!

This is a little different than our usual monthly support group, but we hope it will be a fun adventure! PLEASE RSVP here if you think you'd like to join us! (No worries at all if you end up not being able to make it, but please RSVP if you're interested.)

Note: After struggling to find an outdoor venue that would work on LA's west side, we decided to go full SoCal and just go to the beach! As we attempt to branch out further afield than Pasadena, feel free to email us if you know of a good outdoor space where we could host an event!

A note about COVID/general safety: We will be outside and expect everyone to take the necessary precautions to maintain everyone's health. If you have any (contagious) symptoms, please do not attend. Masking is optional. By attending this event, you agree not to hold LADN liable for any risks (COVID or otherwise) associated with gathering. Thank you for understanding, and please feel free to reach out with any questions.

Support Group Disclaimer:

Please note this is a community organized support group. It is not facilitated by a licensed medical or mental health professional. Talk with your doctor before implementing any advice from the group.

Join us for a virtual book talk and workshop on Sunday, March 3rd, 11:00am-12:30pm, on Utilizing Coping Skills to Deal with Chronic Conditions. The workshop will be led by Laura Seil Ruszczyk and Sharon A. Roloff, the authors of Dysautonomia Diary: Essays and Tips for Enjoying Life Despite Chronic Illness. Attendees will have a chance to win a signed copy of the book!

Dysautonomia Diary is a poignant, biographical book scattered with vignettes that explore serious topics with humor and honesty. This highly personal book maps out a more than decade-long journey with dysautonomia and other chronic conditions. It is targeted towards patients, caregivers and medical professionals seeking a better understanding of, and ways to cope with illness.

Dysautonomia Diary is comprised of eight chapters which start with encouraging quotes, followed by essays and diary questions. Topics include a medical introduction, transitions, having fun, life and death and relationships. The goal of the book is to help the millions of people diagnosed with any form of dysautonomia or other chronic illness. Unfortunately, studies are finding thousands, and perhaps more Covid-19 sufferers have been diagnosed with POTS (Postural Orthostatic Tachycardia Syndrome). It is our hope that this book, along with the increased diagnosis of POTS and other forms of dysautonomia, will increase both awareness and treatment of this disorder.

About the Authors:

Laura is a wife, mom, sister, friend, aunt, writer, chronic illness advocate/volunteer and owner of seven chronic conditions. She is a retired elementary school counselor and a former weekly newspaper editor. She loves bike riding and is thankful any day in which she can ride, despite balance issues.

Sharon is a wife, mom, grandma, sister, friend, aunt and writer. She is retired advanced nurse practitioner of midwifery and pediatrics. She gardens, crafts and volunteers in her community. Her zucchini brownies are a huge hit at the local food pantry.

Join us for our monthly support group for dysautonomia patients and caregivers living in the Los Angeles area. Our support group provides a space for patients to share their experiences related to dysautonomia, as well as an opportunity to provide and receive support from others living with this condition. This meeting will take place in a virtual format via Zoom. Please email LADN@la-dn.org if you are interested in attending and would like to receive the meeting link.

Support Group Disclaimer:

Please note this is a community organized support group. It is not facilitated by a licensed medical or mental health professional. Talk with your doctor before implementing any advice from the group.

LADN's new SickLit Book Club will meet quarterly to discuss books that are either written by authors who have experience with chronic illness and disability or deal with those themes in their writing. By celebrating SickLit, our aim is to see shared experiences reflected in literature - both the challenges and the triumphs of life with illness.⁠ ⁠

We are so excited to announce our first SickLit Book Club selection: a sample of essays from Disability Visibility: First Person Stories from the Twenty-First Century, edited by Alice Wong. This is an amazing compilation of essays showcasing varied disability experiences. We encourage you to read the whole book, but we've chosen a selection of six stories that our book club will focus on (a total of 37 pages):⁠ ⁠

1. When You are Waiting to be Healed by June Eric-Udorie (53-58)⁠ ⁠

2. I’m Tired of Chasing a Cure by Liz Moore (75-81)⁠ ⁠

3. Imposter Syndrome and Parenting with a Disability by Jessica Slice (129-133)⁠ ⁠

4. How to Make a Paper Crane from Rage by Elsa Sjunneson (134-140)⁠ ⁠

5. Six Ways of Looking at Crip Time by Ellen Samuels (189-196)⁠ ⁠

6. The Beauty of Spaces Created for and by Disabled People by s.e. smith (271-275)⁠ ⁠

Our first meeting will take place Monday, February 19th from 5-6:30pm PST over Zoom! We will send a Zoom link that week. Sally K-W & Judy Craig will be facilitating.⁠ ⁠

The book is available in paperback, audible, and kindle from Amazon or your local bookseller (such as Vromans - copies on hand as of now) and hopefully at your local library too! If you are unable to find it to lend and cannot afford a copy, please email us (ladn@la-dn.org), and we'll help you get a copy!⁠ ⁠

Happy reading!!

Join us for our monthly support group for dysautonomia patients and caregivers living in the Los Angeles area. Our support group provides a space for patients to share their experiences related to dysautonomia, as well as an opportunity to provide and receive support from others living with this condition. This meeting will take place in a virtual format via Zoom. Please email LADN@la-dn.org if you are interested in attending and would like to receive the meeting link.

Support Group Disclaimer:

Please note this is a community organized support group. It is not facilitated by a licensed medical or mental health professional. Talk with your doctor before implementing any advice from the group.

Begin the new year with a fun LADN workshop! Led by psychologist, poet, and dysautonomia mom Lisa C. Krueger, we will talk about how creating something – whether a poem, a work of art, or a re-arrangement of a personal schedule – can give us renewed energy, direction, and purpose in our lives. We will consider how the natural world may offer unique wisdom and personal restoration.

There will be a brief poetry reading by Lisa, followed by a couple of non-threatening writing or art exercises. We will spend a little time with nature and discuss its impact. There will be time to chat about whatever is on people’s minds, including care giving, care receiving, burn-out, and sources of vitality in the midst of challenge.

2-3:30 PM in a Pasadena garden. Please RSVP for the address.

A note about COVID/general safety: We will be outside and expect everyone to take the necessary precautions to maintain everyone's health. If you have any (contagious) symptoms, please do not attend. Masking is optional. By attending this event, you agree not to hold LADN or the homeowners liable for any risks (COVID or otherwise) associated with gathering. Thank you for understanding, and please feel free to reach out with any questions.

Join us for our monthly support group for dysautonomia patients and caregivers living in the Los Angeles area. Our support group provides a space for patients to share their experiences related to dysautonomia, as well as an opportunity to provide and receive support from others living with this condition. This meeting will take place in person, outdoors at a backyard in Pasadena. Please RSVP at this link if you would like to attend, and we’ll send you the address.

Our support group will meet from 1:00-2:00pm, followed by a holiday gathering from 2:00-3:00pm.

For our holiday gathering, we’ll be playing an (optional) white elephant gift exchange game! If you’d like to participate, please bring a wrapped gift (with value $25 or less) that has no tags/labels. White elephant gifts can be silly, impractical, serious... or just about anything!

We’ll be supplying holiday cookies and hot chocolate!

A note about COVID/general safety: We will be outside and expect everyone to take the necessary precautions to maintain everyone's health. If you have any (contagious) symptoms, please do not attend. Masking is optional. By attending this event, you agree not to hold LADN or the homeowners liable for any risks (COVID or otherwise) associated with gathering. Thank you for understanding, and please feel free to reach out with any questions.

Support Group Disclaimer:

Please note this is a community organized support group. It is not facilitated by a licensed medical or mental health professional. Talk with your doctor before implementing any advice from the group.

Come enjoy some delicious food & drink at Doghaus Pasadena! (105 N Hill Ave)

Just be sure to show LADN’s flyer, and Doghaus will generously donate 20% of the check to LADN! Thank you Doghaus!!! (Note: There are two DogHaus Pasadena locations — our event will be at the location at 105 N Hill Ave, Pasadena 91106.)

This event will be ongoing all day (11am - 9pm) on Giving Tuesday— Tuesday, November 28th!

Come join us for addressing, stamping, and signing LADN’s end-of-year letter! This is an open house style event where you can drop by to help with a few letters… or stay the whole time!

Our end-of-year letter contains an update on all our organization’s successes from 2023! It will be sent to our entire mailing list and will kindly ask our supporters for year end donations. (Sign up for our mailing list to be sure you receive our letter!)

When: Sunday, November 19th, 11am-3pm

Where: A backyard in Pasadena. Please sign up here to volunteer your help with our letter-writing campaign, and we'll send you the address!

A note about COVID/general safety: We will be outside and expect everyone to take the necessary precautions to maintain everyone's health. If you have any (contagious) symptoms, please do not attend. By attending this event, you agree not to hold LADN or the homeowners liable for any risks (COVID or otherwise) associated with gathering. Thank you for understanding, and please feel free to reach out with any questions.

Join us for our monthly support group for dysautonomia patients and caregivers living in the Los Angeles area. Our support group provides a space for patients to share their experiences related to dysautonomia, as well as an opportunity to provide and receive support from others living with this condition. This meeting will take place in a virtual format via Zoom. Please email LADN@la-dn.org if you are interested in attending and would like to receive the meeting link.

Support Group Disclaimer:

Please note this is a community organized support group. It is not facilitated by a licensed medical or mental health professional. Talk with your doctor before implementing any advice from the group.

Join us for our monthly support group for dysautonomia patients and caregivers living in the Los Angeles area. Our support group provides a space for patients to share their experiences related to dysautonomia, as well as an opportunity to provide and receive support from others living with this condition. This meeting will take place in a virtual format via Zoom. Please email LADN@la-dn.org if you are interested in attending and would like to receive the meeting link.

Support Group Disclaimer:

Please note this is a community organized support group. It is not facilitated by a licensed medical or mental health professional. Talk with your doctor before implementing any advice from the group.

Join us for our fall in-person social event! Let's celebrate Halloween, October's Dysautonomia Awareness Month, and applications closing for LADN’s 2023 Grant Program!

What: Put on your costume, and come join us for a Halloween Party and awareness activities in honor of Dysautonomia Awareness Month!

When: Sunday, October 22nd, 3:00-5:00pm

Where: A backyard in Pasadena. Please just RSVP, and we'll send you the address!

Food/Drink: We'll be providing light snacks and drinks. Feel free to bring any snacks/drinks that you'd like!

Temperature: We are hoping for cool and beautiful fall day, but of course it might be hot in mid October. Please bring whatever you need to stay cool!

A note about COVID/general safety: We will be outside and expect everyone to take the necessary precautions to maintain everyone's health. If you have any (contagious) symptoms, please do not attend. By attending this event, you agree not to hold LADN or the homeowners liable for any risks (COVID or otherwise) associated with gathering. Thank you for understanding, and please feel free to reach out with any questions.

Join us for our monthly support group for dysautonomia patients and caregivers living in the Los Angeles area. Our support group provides a space for patients to share their experiences related to dysautonomia, as well as an opportunity to provide and receive support from others living with this condition. This meeting will take place in a virtual format via Zoom. Please email LADN@la-dn.org if you are interested in attending and would like to receive the meeting link.

Support Group Disclaimer:

Please note this is a community organized support group. It is not facilitated by a licensed medical or mental health professional. Talk with your doctor before implementing any advice from the group.

Join us for our monthly support group for dysautonomia patients and caregivers living in the Los Angeles area. Our support group provides a space for patients to share their experiences related to dysautonomia, as well as an opportunity to provide and receive support from others living with this condition. This meeting will take place in a virtual format via Zoom. Please email LADN@la-dn.org if you are interested in attending and would like to receive the meeting link.

Support Group Disclaimer:

Please note this is a community organized support group. It is not facilitated by a licensed medical or mental health professional. Talk with your doctor before implementing any advice from the group.

Join memoirist and cartoonist Alyssa Graybeal, author of Floppy: Tales of a Genetic Freak of Nature at the End of the World, for a creative writing workshop on maintaining a writing practice through chronic illness. Please RSVP to ladn@la-dn.org and make sure to include any questions for Alyssa! Attendees will be entered to win one of five copies of Floppy!

August 8th from 5-6:30pm on Zoom.

Alyssa Graybeal is a writer and cartoonist whose work explores the emotional landscape of chronic illness and disability, which can be funnier than it sounds. Her memoir Floppy: Tales of a Genetic Freak of Nature at the End of the World (2023) won the Red Hen Press Nonfiction Award, and it is one of the first books about living with Ehlers-Danlos syndrome from a patient’s perspective. She works as an editor and writing coach in Astoria, Oregon.

Alyssa Graybeal will give a brief reading from her new memoir, Floppy. Then she will lead a workshop about maintaining a writing practice when you have a chronic illness. How do you find the time and energy to write? And even if you do make time, where do you begin? She’ll share strategies for maintaining momentum in your craft, and she’ll also lead writing exercises designed to turn off your inner critic and get your pen moving. There will be time for Q&A, with questions collected beforehand.

Join us for our monthly support group followed by an Info Session and Q&A about Metrodora Institute with Metrodora CEO Dr. Laura Pace (see more details below!). Our support group will meet from 1:00-1:45pm, and then our guest speaker will join us from 1:45-2:15!

Support group: 1:00-1:45pm

Join us for our monthly support group for dysautonomia patients and caregivers living in the Los Angeles area. Our support group provides a space for patients to share their experiences related to dysautonomia, as well as an opportunity to provide and receive support from others living with this condition. This meeting will take place in a virtual format via Zoom. Please email LADN.home@gmail.com if you are interested in attending and would like to receive the meeting link.

Support Group Disclaimer:

Please note this is a community organized support group. It is not facilitated by a licensed medical or mental health professional. Talk with your doctor before implementing any advice from the group.

Metrodora Info Session and Q&A with Dr. Laura Pace: 1:45-2:15pm

Join us for an informational session and Q&A about Metrodora Institute, a new destination medical and research center located in Salt Lake City, UT. The Institute is focused on advancing care and accelerating the path to improved diagnostics, therapeutics, and ultimately, cures, for complex neuroimmune axis disorders. Metrodora Institute CEO and Co-Founder, Dr. Laura Pace will discuss Metrodora's new model for coordinated clinical care, current and future research programs, and Metrodora's approach to treating multisystem conditions such as dysautonomia and co-morbid conditions. 

About Dr. Pace: Dr. Laura Pace is a physician-scientist with over 20 years of clinical and research experience. She is a leading neruogastroenterologist specializing in autonomic disorders, genetics, as well as rare and undiagnosed diseases. Dr. Pace has published over 100 peer-reviewed journals and serves as a co-investigator of the NIH Undiagnosed Disease Network (UDN), as well as Principal Investigator for the Argenx Alpha Study, a clinical trial studying an existing therapeutic for the treatment of post-COVID POTS. A fierce patient advocate, she is also a Medical Board member for Dysautonomia International and Chair of the Gastrointestinal Working Group for the International Consortium of Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders. 

Join us for our monthly support group for dysautonomia patients and caregivers living in the Los Angeles area. Our support group provides a space for patients to share their experiences related to dysautonomia, as well as an opportunity to provide and receive support from others living with this condition. This meeting will take place in a virtual format via Zoom. Please email LADN.home@gmail.com if you are interested in attending and would like to receive the meeting link.

Support Group Disclaimer:

Please note this is a community organized support group. It is not facilitated by a licensed medical or mental health professional. Talk with your doctor before implementing any advice from the group.

Join us for our monthly support group for dysautonomia patients and caregivers living in the Los Angeles area. Our support group provides a space for patients to share their experiences related to dysautonomia, as well as an opportunity to provide and receive support from others living with this condition. This meeting will take place in a virtual format via Zoom. Please email LADN.home@gmail.com if you are interested in attending and would like to receive the meeting link.

Support Group Disclaimer:

Please note this is a community organized support group. It is not facilitated by a licensed medical or mental health professional. Talk with your doctor before implementing any advice from the group.

Please join us for LADN’s Inaugural Fundraiser! Please RSVP by "buying” a free ticket on our fundraising page OR by emailing us LADN.home@gmail.com if you'd like to attend, and we’ll send you the address!

When: Sunday, May 21st, 12-3pm

What: LADN officially became a 501(c)(3) nonprofit organization this year, and we are kicking things off with a fundraiser event! Come celebrate with us! We invite you to join us for lunch at the Pie ‘N Burger food truck, as they will be donating 100% of sales to LADN! There will also be a silent auction with a variety of auction items being called every 30 minutes throughout the event!

Where: Outdoors at a private home garden in Pasadena. For security reasons, we’ll send you the address after you RSVP by "buying” a free ticket on our fundraising page OR by emailing us LADN.home@gmail.com.

A note about COVID/general safety: We will be outside and expect everyone to take the necessary precautions to maintain everyone's health. If you have any (contagious) symptoms, please do not attend. Masking is optional. By attending this event, you agree not to hold LADN or the homeowners liable for any risks (COVID or otherwise) associated with gathering. Thank you for understanding, and please feel free to reach out with any questions.

FAQ’s:

What will the money raised be used for? We have some general operating costs to run our organization and provide services such as support groups, workshops and social events. Funds will also go toward helping us launch a grant program to assist with medical expenses for dysautonomia patients in need. We plan to launch this program in late 2023 if we have adequate funding.

Can I donate outside of the fundraiser event? Of course! We accept donation online here. As we are a 501(c)(3) organization, your donations are tax deductible.

Is free parking available? Yes! There is plenty of free street parking available at the event location.

Do I need to come right at noon and stay for the whole event? No! This is an open house style event, and you are welcome to come any time between noon and 3pm! Auction items will be called throughout the event, in case you can’t stay for the full event.

Are children welcome? Absolutely! We will have a play area and kid-friendly activities.

I have POTS/dysautonomia and need seating and shade. Will this be available? Yes! We will have plenty of tables and chairs, as well as shade covering in case it’s warm.

What food will be available at the Pie ‘N Burger truck? You can find the menu for the Pie ‘N Burger truck here. There is a gluten-free veggie burger option available.

I'd like to help! What can I do? Please email us if you would like to volunteer at the fundraiser or help with set up/clean up. We also are looking for a variety of items to be donated to our silent auction. Please let us know if you would like to donate an item such as a gift basket, tickets to local events, travel vouchers, art pieces, etc. You can also join our online fundraising page to help with our fundraising efforts!

Come join us for a calming forest bathing workshop at Ernest E. Debs Park in Los Angeles. Please see the invite below for more details, and feel free to reach out if you have any questions. Please RSVP to LADN.home@gmail.com if you'd like to attend. 

What: Join us for a forest bathing workshop to calm the nervous system and re-connect with nature. We will be guided by the renowned Ben Page for a relaxing experience of Forest Bathing, also known as Shinrin Yoku or Forest Therapy. This is an opportunity to slow down and get our 5 senses in tune with the trees and nature that surround us and experience a mindful journey in a beautiful Los Angeles park. If you want to learn more about Forest Bathing and the health benefits associated with it, check out this article.

When: Sunday, April 30th, 4:00-5:15pm. Please do your best to arrive on time, as this guided workshop will start promptly at 4:00pm.

Where: Ernest E. Debs Park, 4235 Monterey Rd, Los Angeles, CA 90032. There is plenty of free parking available in the park’s main parking lot, including some handicap spots. We will have blue and purple balloons at the picnic table where we are meeting, so that you can easily locate us. It is a short walk from the parking lot to our workshop area, so if you use a mobility aid, we recommend bringing that as well!

Refreshments: We will have some small bottles of water available for you, and you are of course welcome to bring any drinks/snacks for yourself that you’d like.

Temperature: We'll be outdoors, and there are some trees around for shade. But you may want to bring a hat/sunglasses/sunscreen if you are sensitive to sun exposure. We recommend dressing in layers to stay comfortable.

A note about COVID/general safety: We will be outside and expect everyone to take the necessary precautions to maintain everyone's health. If you have any (contagious) symptoms, please do not attend. Masking is optional. Be aware this event is at a public park where there will be members of the general public around. By attending this event, you agree not to hold LADN or our guide liable for any risks (COVID or otherwise) associated with gathering. Thank you for understanding, and please feel free to reach out with any questions.

RSVP to LADN.home@gmail.com by April 26th so that we can give our guide an accurate head count ahead of time! Thank you!

About our forest bathing guide, Benjamin Page:

Ben Page is a Forest Therapy Guide, global advocate for the practice and the author of Healing Trees: A Pocket Guide to Forest Bathing. He is the founder of the Shinrin Yoku LA and Integral Forest Bathing and has been guiding Forest Therapy walks since 2015. During his tenure as a trainer and mentor of guides, Ben has trained hundreds of guides around the world. From 2017-2020, he also served as the Director of Training for the Association of Nature and Forest Therapy Guides and Programs, specializing in curriculum and pedagogical design. Since his practice began, Ben has been featured in such publications as Women’s Health, USA TODAY, Good Morning America, The Washington Post, and WebMD. Ben is also the co-founder of The Open School, Southern California’s only free democratic school. He holds a B.A. in religious studies from Carleton College and an M.A. in human development and social change from Pacific Oaks College.

Join us for our monthly support group for dysautonomia patients and caregivers living in the Los Angeles area. Our support group provides a space for patients to share their experiences related to dysautonomia, as well as an opportunity to provide and receive support from others living with this condition. This meeting will take place in a virtual format via Zoom. Please email LADN.home@gmail.com if you are interested in attending and would like to receive the meeting link.

Support Group Disclaimer:

Please note this is a community organized support group. It is not facilitated by a licensed medical or mental health professional. Talk with your doctor before implementing any advice from the group.

Join us for our monthly support group for dysautonomia patients and caregivers living in the Los Angeles area. Our support group provides a space for patients to share their experiences related to dysautonomia, as well as an opportunity to provide and receive support from others living with this condition. This meeting will take place in person, outdoors at a backyard in Pasadena. Please email LADN.home@gmail.com if you would like to attend, and we’ll send you the address.

A note about COVID/general safety: We will be outside and expect everyone to take the necessary precautions to maintain everyone's health. If you have any (contagious) symptoms, please do not attend. Masking is optional outdoors, but please have a mask if you'd like to visit the indoor restroom. By attending this event, you agree not to hold LADN or the homeowners liable for any risks (COVID or otherwise) associated with gathering. Thank you for understanding, and please feel free to reach out with any questions.

Support Group Disclaimer:

Please note this is a community organized support group. It is not facilitated by a licensed medical or mental health professional. Talk with your doctor before implementing any advice from the group.

Join us for our monthly support group for dysautonomia patients and caregivers living in the Los Angeles area. Our support group provides a space for patients to share their experiences related to dysautonomia, as well as an opportunity to provide and receive support from others living with this condition. This meeting will take place in a virtual format via Zoom. Please email LADN.home@gmail.com if you are interested in attending and would like to receive the meeting link.

Support Group Disclaimer:

Please note this is a community organized support group. It is not facilitated by a licensed medical or mental health professional. Talk with your doctor before implementing any advice from the group.

We would love for you to come celebrate our community's 5th birthday at our next outdoor in-person social event on February 19th! We'll also be creating vision boards to inspire our goals and dreams for 2023! Please see the invite below for more details, and feel free to reach out if you have any questions. Please RSVP to LADN.home@gmail.com if you'd like to attend. 

What: LADN's 5th Birthday Party & Vision Board Workshop! We'll be celebrating LADN's 5th year of dysautonomia community-building with some birthday cupcakes! We'll also be creating vision boards to inspire the new year! All materials will be provided to create the vision boards, but if you have specific items/images/stickers/magazines you'd like to bring to add to your vision board, feel free to bring them! If you're not familiar with what vision boards are, you can read more about them here!

When: Sunday, February 19th, 1-3pm

Where: A backyard in Pasadena. Please RSVP to LADN.home@gmail.com, and we'll send you the address!

Food/Drink: We'll be providing some snacks and drinks including cupcakes, popcorn, tea, and water. (There's no need to bring any food/drink, unless you have specific items you'd like!)

Temperature: We'll be outdoors on a covered patio. We have some heaters in case it's cold, but we recommend dressing in layers to stay comfortable.

A note about COVID/general safety: We will be outside and expect everyone to take the necessary precautions to maintain everyone's health. If you have any (contagious) symptoms, please do not attend. Masking is optional outdoors, but please have a mask if you'd like to visit the indoor restroom. By attending this event, you agree not to hold LADN or the homeowners liable for any risks (COVID or otherwise) associated with gathering. Thank you for understanding, and please feel free to reach out with any questions.

RSVP to LADN.home@gmail.com by February 16th, and we'll send you the address!

Join us for our monthly support group for dysautonomia patients and caregivers living in the Los Angeles area. Our support group provides a space for patients to share their experiences related to dysautonomia, as all as an opportunity to provide and receive support from others living with this condition. This meeting will take place in a virtual format via Zoom. Please email LADN.home@gmail.com if you are interested in attending and would like to receive the meeting link.

Our support group will meet from 1:00-1:45.

From 1:45 - 2:15, our guest speaker employment lawyer Ramit Mizrahi will join us for a talk on “Disability Accommodations in the Workplace”.

Ramit Mizrahi, founder of Mizrahi Law, focuses exclusively on employment law. Ramit is a graduate of Yale Law School, UC-Berkeley, and the London School of Economics. She was recently selected to the Super Lawyers Top 50 Women in Southern California list.

Support Group Disclaimer:

Please note this is a community organized support group. It is not facilitated by a licensed medical or mental health professional. Talk with your doctor before implementing any advice from the group.

Join us for our monthly support group for dysautonomia patients and caregivers living in the Los Angeles area. Our support group provides a space for patients to share their experiences related to dysautonomia, as well as an opportunity to provide and receive support from others living with this condition. This meeting will take place in a virtual format via Zoom. Please email LADN.home@gmail.com if you are interested in attending and would like to receive the meeting link.

Support Group Disclaimer:

Please note this is a community organized support group. It is not facilitated by a licensed medical or mental health professional. Talk with your doctor before implementing any advice from the group.